In this episode, we tune into the audio from a special webinar from the Myotonic Dystrophy Foundation (MDF) about exercise for people with Myotonic Dystrophy (DM). Join Dr. Andy Rohrwasser- MDF Chief Scientific Officer, Dr. Donovan Lott- a PT and PhD at University of Florida and specialist in muscular dystrophy, and cardiologist Dr. Matt Wheeler …
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In this episode, host Parm Padgett interviews Dr. Sarah Milne about different rehabilitation strategies for physical therapists working with people with degenerative cerebellar ataxias. Dr. Milne shares results from her clinical trials, as well as tips and treatment approaches from her time in Friedreich Ataxia Clinic. If you’re curious about components of effective rehabilitation for …
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In this episode, host Ken Vinacco talks with guests Andrew Rosen and Ashley Durando to discuss the National Ataxia Foundation mission and resources.The Degenerative Diseases Special Interest Group is part of the Academy ofNeurologic Physical Therapy – www.neuroPT.orgFor questions about this podcast, please contact neuroddsig@gmail.com.Guest InformationAndrew Rosen, CEO of the National Ataxia FoundationAshley Dorundo, PT, …
Continue reading “DD SIG Navigating the Path Episode 5: The National Ataxia Foundation”
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In this episode, host Ken Vinacco talks with guest Gia Mannone to discuss the resources that the Huntington’s Disease Society of America (HDSA www.hdsa.org ) offers for people with HD. Gia discusses events, ways to find specialized medical care, and education for people with HD in all stages of the disease. If you treat people with …
Continue reading “DD SIG Navigating the Path Episode 4: Huntington’s Disease Society of America “
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This episode of 4D highlights results and implications from an article in the July 2025 Journal of Neurologic Physical Therapy special issue on walking in people with neurological health conditions. Host Parm Padgett interviews two authors, Michael (Mike) VanNostrand and Patrick (Paddy) Monaghan, about their recent study examining the role of proprioception in backward walking …
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In this episode, host Ken Vinacco interviews Franchino Porciuncula, the winner of the DDSIG platform award at CSM 2025 in Houston, TX. They discuss his research related to utilizing closed-loop, music-based rhythmic auditory stimulation (RAS) with people with Parkinson’s Disease (PD). They review the impact on real-world walking and gait quality, as well as participant …
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In this episode, host Ken Vinacco sits down with guests Lauren LaMar and Kyle Vasher to discuss the range of resources that the ALS Association offers for people with ALS. Lauren shares her role in the multidisciplinary clinic as well as the range of online, local and one-on-one support services offered for patients and caregivers. …
Continue reading “DD SIG Navigating the Path Episode 3: The ALS Association “
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In this insightful episode, host Parm Padgett sits down with Dr. Alice Nieuwboer, a leading expert in Parkinson’s rehabilitation, to unpack the complex and frustrating phenomenon of freezing of gait (FOG). From the role of dopamine loss and neural “overload” to the influence of stress, motor challenges, and cognitive demands, Dr. Nieuwboer explains what we …
Continue reading “DD SIG Episode 55: Freezing of Gait with Alice Nieuwboer”
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In this episode, host Ken Vinacco sits down with special guest Donna Sperlakis to explore the wide range of resources and support services offered by the Parkinson’s Foundation. Together, they dive into the educational tools, community programs, and research initiatives designed to empower individuals living with Parkinson’s disease and their families. Donna shares personal insights …
Continue reading “DD SIG: Navigating the Path Episode 2: The Parkinson’s Foundation”
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Tune in to the first episode of our new series, Navigating the Path: Resources for Patients with Neurodegenerative Diseases, which highlights organizations that provide resources and information to people with neurodegenerative diseases. In this episode, Lauren Corley, a National MS Society representative, joins our host Christina Burke to explore the many resources and programs offered …
Continue reading “DD SIG Navigating the Path Episode 1: National MS Society “
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