DD SIG Episode 49: Muscular Dystrophy with Claudia SenesacDD SIG Episode 49: Muscular Dystrophy with Claudia Senesac

In this installment of our series on rare neurologic diseases, host Ken Vinacco talks with Claudia Senesac about physical therapy for people with Duchenne Muscular Dystrophy (DMD) and Becker Muscular Dystrophy (BMD). DMD and BMD are both disorders that cause progressive muscle weakness, with BMD often presenting with less severe weakness and later in life. Claudia covers the medical management and prognosis, PT assessment, and PT treatment for people with these unique diagnoses. 

The Degenerative Diseases Special Interest Group is part of the Academy of  Neurologic Physical Therapy – www.neuroPT.org 

A link to the show notes will be posted here when available

DD SIG Episode 48: Limb Girdle Muscular Dystrophy with Megan Iammarino

In this installment of our series on rare neurologic diseases, Ken Vinnaco talks with Megan Iammarino about physical therapy for people with Limb Girdle Muscular Dystrophy (LGMD), an umbrella term that encompasses a varied group of disorders affecting the proximal muscles around the shoulders and hips that impacts approximately 2 in every 100,000 people. Megan covers the assessment, PT treatment and prognosis for people with this unique diagnosis that causes significant balance and gait challenges.  

Show notes available here : https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes—2019/ddsig-podcast-show-notes-2023/show-notes—episode-48-megan-iammarino-lgmd.pdf

The Degenerative Diseases Special Interest Group is part of the Academy of  Neurologic Physical Therapy – www.neuroPT.org

DDSIG: Bonus Episode-  CSM Platform Award: Parkinson’s Disease Rehabilitation Access and Utilization in Black and African American Chicagoland Communities – with Michelle Walaszek 

In this episode, Chris interviews Michelle Walaszek, a winner of the DDSIG platform award at CSM Boston in 2024. Michelle, a PhD candidate and research associate in the Knowledge Translation of Exercise and Activity for Symptom Management (KTEAM) lab at Shirley Ryan AbilityLab, explains important qualitative research that her team completed in their local Chicagoland area. She discusses themes that arose from survey data and analysis that assessed attitudes and experience with PD rehabilitation care for the Black or African American (BAA) community. Chris and Michelle also talk about some early applications of this information for clinicians, as well as next steps in the research.  

The Degenerative Diseases Special Interest Group is part of the Academy of  Neurologic Physical Therapy – www.neuroPT.org 
 

Vestibular SIG: Multidisciplinary Rehabilitation in Pediatric Concussion- Episode #70

Host Jennifer Burus PT, NCS is joined by Anne W. Hunt, PhD, OT Reg (Ontario) and Nick Reed, PhD, MScOT, OT Reg (Ontario) for a discussion on multidisciplinary care for pediatric patients with concussion. Dr. Hunt is an Assistant Professor Teaching Stream in the Department of Occupational Science and Occupational Therapy at the University of Toronto where she teaches courses on pediatric rehabilitation and fieldwork. Her research focuses on developing interventions that enable individuals with brain injury to participate optimally in meaningful activities in everyday life. Dr. Reed is an Associate Professor in the Department of Occupational Science and Occupational Therapy at the University of Toronto where he directs the OAK (Outcomes, Advocacy and Knowledge) Concussion Lab and holds a Canada Research Chair (Tier 2) in Pediatric Concussion.  His work focuses on developing, delivering and evaluating research, educational and clinical programming specific to youth and concussion.

The Vestibular Special Interest Group is a part of the Academy of Neurologic Physical Therapy. neuropt.org.

DDSIG: Bonus Episode- CSM Platform Award: Gait Initiation Dynamics in Parkinson Disease – with CJ Duppen 

In this episode, Parm interviews Chelsea “CJ” Duppen, a winner of the DDSIG platform award at CSM Boston in 2024. CJ, a fourth year PhD student at the University of North Carolina, works with Dr. Mike Lewek in the Recovery of Gait and Neurorehabilitation (ReGaiN) lab, studying gait and gait initiation impairments in people living with Parkinson Disease, as well as motor learning. Parm and CJ discuss CJ’s poster, “Gait Initiation Dynamics in Parkinson Disease: Impact of Weight Shift Amplitude and Freezing of Gait.” CJ tell us about the importance of anticipatory postural adjustments for weight shifts required in gait initiation, and how these play a role in first step length. Have you ever wondered if better weight shift improved someone with PD’s first step? Listen in to learn more!  

The Degenerative Diseases Special Interest Group is part of the Academy of  Neurologic Physical Therapy – www.neuroPT.org 
 

Vestibular SIG- Integrating Psychology into Vestibular Rehab- Episode # 69

Host Maureen Clancy PT, DPT, OCS is joined by Joanna Wolfson PhD, ABPP and Emily Kostelnik PhD in a discussion on the integration of psychological care for patients with vestibular disorders. Dr. Kostelnik is a Clinical Health Psychologist who focuses on behavioral health education for the vestibular community through her company Rooted Behavioral Education and provides licensed consultation and therapy through her private practice, The Vestibular Psychologist. Dr. Wolfson is a senior psychologist at Rusk Rehabilitation, NYU Langone Health and Clinical Assistant Professor of Rehabilitation Medicine at NYU Grossman School of Medicine. She is board certified in Clinical Health Psychology and provides individual and group psychotherapy to patients with vestibular and medical conditions.

SCI Chats Episode # 8

In our newest episode, we talk with physical therapist, Tori Fallgren, about complex rehab technology, and the advocacy efforts that make a huge impact in the lives of individuals with SCI. Join host, Kristen Cezat, as she and Tori discuss the recent “win” in advocacy efforts related to power wheelchair seat elevation and so much more.

APTA Advocacy Win: Power Seat Elevation: https://www.apta.org/news/2023/05/19/power-elevation-ncd

DDSIG: Bonus Episode- CSM Poster Award: The Tinetti POMA Discriminates Between Fallers and Non-Fallers in pALS -with Kayla Chomko

In this episode, Chris Burke interviews Kayla Chomko who, along with Jen Canbeck, Lauren Tabor Gray, and Rania Massad, won the DDSIG Best Poster Award at APTA’s Combined Sections Meeting in February 2024.  Chris and Kayla discuss her team’s poster, “The Tinetti Performance Oriented Mobility Assessment Discriminates between Fallers and Non-Fallers in pALS: A Retrospective Study”. They delve into the impetus for and findings from their research, how Kayla utilizes data from outcome measures to facilitate patient discussions in clinic, and what direction future research may take.  

The Degenerative Diseases Special Interest Group is part of the Academy of 
Neurologic Physical Therapy – www.neuroPT.org 

Are you a PT who works with this population? Participate in a national survey on outcome measures for Physical Therapists and Physical Therapist Assistants working with pALS (Link active as of April 2024): https://redcap.nova.edu/redcap/surveys/?s=JKYLEC3KC9RFK7WF 

Show notes available here:
https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes—2019/ddsig-podcast-show-notes-2023/csm-award-winners-bonus-episode-2—kayla-chomko.pdf

Stroke SIG: Pelvic Health across the Continuum of Care for Patients with Neurologic Conditions: Episode 24

In this episode, host Marissa Moran, PT, DPT is joined by Ariana Jones, PT, DPT, Board-Certified Clinical Specialist in Women’s Health Physical Therapy, and Gillian McLean, PT, DPT, Board-Certified Clinical Specialist in Neurologic Physical Therapy, to discuss pelvic health therapy across the continuum of care for the neurologic population, particularly those following a stroke. In this podcast, you may expand your knowledge on the pelvic floor and normal urination/bowel movements. Listen to learn how pelvic health and neurologic physical therapists can collaborate to deliver the effective and holistic care to patients, as well as education you can provide to patients regarding pelvic health concerns/when to see a pelvic health specialist to promote optimal well-being.

When to Refer to Pelvic PT: Pelvic Floor Dysfunction Screening Questions (as referenced in the podcast interview):

  • Are you experiencing any urinary incontinence?
  • Are you able to delay urination if you have the urge? If so, for how long?
  • Are you experiencing any constipation?
  • Are you experiencing any fecal incontinence?
  • Are you experiencing any pain in the pelvic or abdominal region?

Reference for the screening questions: Siracusa C, Gray A. Pelvic Floor Considerations in COVID-19. J Womens Health Phys Therap. 2020;44(4):144-151. doi:10.1097/JWH.0000000000000180

The information in this podcast is meant for the benefit of physical therapists. It is not meant for personal medical diagnosis and/or treatment. Individuals should always consult an appropriate medical practitioner with questions.

This is for informational and educational purposes only. It does not constitute and should not be used as a substitute for medical advice, diagnosis, rehabilitation, or treatment. Patients and other members of the general public should always seek the advice of a qualified healthcare professional regarding personal health and medical conditions. The Academy of Neurologic Physical Therapy and its collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication. The views or opinions expressed are those of the individual creators and do not necessarily represent the position of the Academy of Neurologic Physical Therapy.

Please send comments or questions on this podcast to the Stroke SIG at strokesig@gmail.com.

The Stroke Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.com.

DD SIG: Combined Sections Meeting (CSM) 2024 Preview – Bonus Episode 

In this episode of 4D, hosts Parm Padgett and 4D student intern Shannon Brown talk through the degenerative disease programming scheduled for CSM 2024. If you’re going to CSM this February, tune in while you travel, or even while you commute from your hotel in the morning to get some inspiration for what to see each day. We at 4D hope to see you there!  

The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org  

 

Learn more about CSM and the programming discussed by visiting the CSM website: https://www.apta.org/csm   

This is for informational and educational purposes only. It should not be used as a substitute for clinical decision making. The Academy of Neurologic Physical Therapy and its collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication. The views or opinions expressed are those of the individual creators and do not necessarily represent the position of the Academy of Neurologic Physical Therapy